Notice to Users

ALL USE OF THIS SITE IS SUBJECT TO eGENOME AND THE CHILDREN'S HOSPITAL OF PHILADELPHIA'S TERMS OF USE AGREEMENT

TERMS OF USE

This web site is hosted and operated by the Children's Hospital of Philadelphia ("CHOP"). Please read these Terms of Use ("Terms") carefully before accessing the web site. By accessing the eGenome web site or transmitting any material, information, or data to the eGenome web site (the "Site") you indicate that you have read the following terms and agree to be bound by and comply with them. If you do not so agree, please promptly exit the site.

Right to Use: CHOP hereby grants you a non-exclusive license to use the research, data sets and information (collectively called "Data") posted on the Site in accordance with these Terms. CHOP at any time in its sole discretion, and without further notice, may accept, reject, or delete Data in whole or in part submitted for display on the site.

Limitations on Use: You agree not to make any unauthorized use of the Site or the Data, including but not limited to: uploading, posting, emailing, transmitting or otherwise making available any material that contains software viruses or any other computer code, files or programs designed to interrupt, destroy or limit the functionality of any computer software or hardware or telecommunications equipment; and attempting to defeat or circumvent security features, using the Site for other than its intended purposes, denying service to authorized users, accessing, altering, obtaining, altering, damaging or destroying information or otherwise interfering with the Site or its operation. You agree that you will not upload, post, email, transmit or otherwise make available any data, material or information that you do not have a right to make available under any law or under contractual or fiduciary relationships (such as inside information, proprietary and confidential information learned or disclosed as part of employment relationships or under nondisclosure agreements). You further agree not to upload, post, email, transmit or otherwise make available any data, material or information that infringes any patent, trademark, trade secret, copyright or other proprietary rights ("Rights") of any party. If you do transmit any data to CHOP protected by copyright or, then it is your responsibility to place an appropriate copyright notice on the data so transmitted, so that the copyright status of the data may be properly indicated on the website. Failure to include a copyright notice relieves CHOP of any responsibility to indicate the copyright status of posted data. if data submitted to CHOP is in the public domain, then you agree to so indicate when transmitting the data to CHOP. in any case, you agree that CHOP may rely on your indication of copyright status, and that CHOP has no independent duty to investigate or ascertain the copyright status of material transmitted to it, regardless of whether a copyright notice, or no copyright notice, or notice of public domain has been included with the data.

Security Notice: CHOP may use software programs to monitor this Site for security purposes to ensure it remains available to all users and to protect information in the system. By accessing this Site, you are expressly consenting to these monitoring activities.

Unauthorized attempts to defeat or circumvent security features, to use the Site for other than its intended purposes, to deny service to authorized users, to access, alter, obtain, damage or destroy information, or otherwise to interfere with the Site or its operation are prohibited. Evidence of such acts may be disclosed to law enforcement authorities and result in criminal prosecution under the Computer Fraud and Abuse Act of 1986 and the National Infrastructure Protection Act of 1996, codified at section 1030 of Title 18 of the United States Code, or other applicable criminal laws.

Disclaimer of Endorsement: Reference herein to any specific commercial products, process, or service by trade name, trademark, manufacturer, or otherwise, does not constitute or imply its endorsement, recommendation, or favoring by CHOP. The views and opinions of authors expressed herein do not necessarily state or reflect those of CHOP, and shall not be used for advertising or product endorsement purposes.

Disclaimer of Warranties: WITH RESPECT TO DATA AVAILABLE ON THE SITE, CHOP MAKES NO WARRANTY, EXPRESS OR IMPLIED, INCLUDING THE WARRANTIES OF MERCHANTABILITY AND FITNESS FOR A PARTICULAR PURPOSE, AND ASSUMES NO LIABILITY OR RESPONSIBILITY FOR THE ACCURACY, COMPLETENESS, OR USEFULNESS OF ANY INFORMATION, DATA, APPARATUS, PRODUCT OR PROCESS ON THE SITE, AND FURTHER MAKES NO WARRANTY THAT THE USE OF THE INFORMATION, DATA, APPARATUS, PRODUCT OR PROCESSES WILL NOT INFRINGE ANY THIRD PARTY PATENTS, COPYRIGHTS, TRADEMARKS OR OTHER RIGHTS. THE DATA IS PROVIDED "AS IS." THE SITE MAY PROVIDE LINKS TO OTHER INTERNET SITES ONLY FOR THE CONVENIENCE OF WORLD WIDE WEB USERS. CHOP IS NOT RESPONSIBLE FOR THE AVAILABILITY OR CONTENT OF THESE EXTERNAL SITES, NOR DOES CHOP ENDORSE, WARRANT OR GUARANTEE THE PRODUCTS, SERVICES, DATA OR INFORMATION DESCRIBED OR OFFERED AT THESE OTHER INTERNET SITES.

Disclaimer of Liability: In no event shall CHOP be liable for any special, incidental, indirect or consequential damages of any kind, lost profits, or any damages whatsoever resulting from a loss of use of or interruption of access to the Data or the Site, whether or not advised of the possibility of damage, or on any theory of liability arising out of or in connection with the use or performance of Data on the Site.

Copyright Status: The Site, itself, including without limitation, the presentation of the Data in charts and tables, the look and feel of the Site, the layout of web pages, and all other text or content created by CHOP is copyright protected. For such material, CHOP retains all rights, including without limitation, the rights of reproduction and redistribution. Third party authors who submit material to the Site grant to CHOP a royalty-free, worldwide, non-exclusive license to use, display, modify, create derivative works from, reproduce, redistribute, and publish such material in connection with the Site. To the extent that material is in the public domain, it may be freely downloaded and reproduced. Third party submitting authors and copyright holders retain all rights to their copyright material. All persons reproducing, redistributing or using copyright material in any way must adhere to the following conditions:

A person using copyright materials online may view, reproduce or store copies of such data or materials, provided that the information is for her or his individual use.

Any copies of materials printed from the Site, in whole or in part, must include the copyright notice.

The copyright material may not be distributed to any other person without the prior permission of the author, EXCEPT THOSE USES CONSISTENT WITH THE "FAIR USE" LIMITATIONS OF U.S. COPYRIGHT LAW, which generally permit use for noncommercial, educational purposes, such as teaching, research, criticism and news reporting.

Requests for permission to reproduce, redistribute or otherwise use materials in a manner not expressly authorized in this section should be directed to .

Privacy Notice: CHOP collects certain forms of information through standard Web logs for the purpose of site management. Of the information we learn about you from your visit to genome.chop.edu, we store only the following:

the Internet Protocol (IP) address of the domain from which you access the Internet (i.e., 210.987.654.321), either your individual address or the proxy provided by your Internet Service Provider (ISP);

the date and time you access our site;

pages you view (recorded by the text and graphics files that compose those pages);

terms entered onto our search engine;

the Internet address of the web site from which you linked to our site and search terms used to find our site if using an Internet search engine; and

Browser version and operating system of the computer you are using.

This information is used to measure the number of visitors to the various sections of our Site and to help us make our Site more useful to visitors. Unless it is specifically stated otherwise, no additional information will be collected about you. This information is not to be shared with anyone beyond the web site support staff, except when required by law enforcement investigation, and is used only as a source of anonymous statistical information.

We use summary statistics to help us make our Site more useful to visitors, such as assessing what information is of most and least interest to visitors, and for other purposes, such as determining the Site's technical design specifications and identifying system performance and potential problem areas. We do not give, share, sell or transfer any personal information to a third party.

When inquiries are emailed to us, we store the question and the email address information so that we may respond electronically. Unless otherwise required by statute, we do not identify publicly who sends questions or comments to our Site. We will not obtain information that will allow us to identify you when you visit our Site, unless you choose to provide such information to us. We do not forward your mail outside of CHOP nor do we collect your name and email address for any purpose other than to respond to your query. We will only maintain the information as long as needed to respond to your question or to fulfill the stated purpose of the communication. Emails may otherwise be used for promotional purposes by CHOP in connection with the Site and in accordance with the Terms.

Email sent to CHOP may be seen by a number of people who are responsible for answering questions. If the information specialist who answers the mail does not know the answer to your question, your query may be forwarded to another CHOP employee more experienced in that area. You should be aware that email is not secure. Therefore, if your communication contains sensitive or personal information, you may want to convey that information by alternative means.

About Cookies: The Site may use cookies. A cookie is a small file that a web site transfers to your computer's hard disk, allowing the server to "remember" specific information about your session.

Requests to send cookies from CHOP web pages are not designed to collect information about you, but only about your browser "session." The cookie makes it easier for you to use the dynamic features of these web pages and enhances your user experience. Unless a CHOP web page specifically notifies you otherwise, we will not collect and maintain personal information about you.

To protect your privacy, be sure to close your browser completely after you have finished conducting business with a web site that uses cookies. If you are concerned about the potential use of information gathered from your computer by cookies, you can set your browser to prompt you before it accepts a cookie. Most Internet browsers have settings that let you identify and/or reject cookies.

Indemnity: You agree to indemnify and hold CHOP and its subsidiaries, affiliates, officers, agents, or other partners, and employees, harmless from any claim or demand, including reasonable attorneys' fees, made by any third party due to or arising out of data, or any materials or information you submit, post, transmit or make available through the Site, your use of the Site, your connection to the Site, your violation of these Terms or your violation of any rights of another party (including, but not limited to, your employer or, if you are an agent, your principal).

Termination: You agree that CHOP, in its sole discretion, may terminate your use of the Site. CHOP may also in its sole discretion, and at any time, discontinue providing the Site, or any part thereof, with or without notice. You agree that any termination of your access to the Site under any provision of these Terms may be effected without prior notice. Further, you agree that CHOP shall not be liable to you or any third-party for any termination of your access to the Site.

General: The Terms constitute the entire agreement between you and CHOP and govern your use of the Site, superceding any prior agreements between you and CHOP. The Terms and the relationship between you and CHOP shall be governed by the laws of the State Commonwealth of Pennsylvania without regard to its conflict of law provisions. You and CHOP agree to submit to the personal and exclusive jurisdiction of the Pennsylvania and United States courts located within the county of Philadelphia, in the State of Pennsylvania. The failure of CHOP to exercise or enforce any right or provision of the Terms shall not constitute a waiver of such right or provision. If any provision of the Terms is found by a court of competent jurisdiction to be invalid, the parties nevertheless agree that the court should endeavor to give effect to the parties' intentions as reflected in the provision, and the other provisions of the Terms remain in full force and effect.

Purpose: This Site is presented for the sole purpose of disseminating scientific information for public benefit. THE SITE AND ANY INFORMATION PROVIDED ON THE SITE IS NOT INTENDED TO CONSTITUTE, AND YOU AGREE THAT THEY DO NOT CONSTITUTE, THE PRACTICE OF OR THE FURNISHING OF MEDICAL, NURSING, OR PROFESSIONAL HEALTH CARE ADVICE, DIAGNOSIS, CONSULTATION, OR TREATMENT OR SERVICES IN ANY JURISDICTION IN THE WORLD. THE SITE AND ANY INFORMATION PROVIDED ON OR THROUGH THE SITE IS NOT TARGETED TO USERS IN ANY PARTICULAR LOCALITY, NOR INTENDED TO CONSTITUTE, AND YOU AGREE THAT THEY DO NOT CONSTITUTE, DOING BUSINESS IN ANY JURISDICTION OR THE SOLICITATION OF BUSINESS ANYWHERE BY CHOP, NOR DO THEY CONSTITUTE ANY CONTACTS WITH ANY JURISDICTION OUTSIDE THE COMMONWEALTH OF PENNSYLVANIA. If you are located in any jurisdiction in the world where the common, statutory, regulatory, or codified laws of such jurisdiction would void these Terms in whole or in any essential part (the essential parts being at least, but not only, the exclusive jurisdiction and venue provisions, the warranty disclaimers, the limitations of liability, and the privacy guidelines and terms of use), or would make accessing this Site illegal, then you are not authorized to use this Site and, if you do so, it is entirely at your own risk.